tag:blogger.com,1999:blog-679982583847135662.post1786532654891118329..comments2022-07-27T00:08:13.293-07:00Comments on The Original Dragon Mother: David Bowie, Alan Rickman and Glenn Frey - should we have known they were sick?Kazhttp://www.blogger.com/profile/06883203750700550391noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-679982583847135662.post-41298464819288061132018-05-30T06:14:02.287-07:002018-05-30T06:14:02.287-07:00I think it's up to anyone whether they share t...I think it's up to anyone whether they share their conditions, whether they be a public figure or a 'real life' person. I have ankylosing spondylitis and fibro, and a host of other conditions, including not quite diagnosed gut conditions, but most of my illnesses are autoimmune. Some of the meds I have been given have made me very sick and caused other illnesses. But this is the same with many conditions. It doesn't mean I'll stop taking what my specialists suggest are best for me, because they are the experts. And yes, I'll continue to try everything else as well! And, it's sad when people die, particularly those talented icons we think of being immortal. But none of us are. Anonymoushttps://www.blogger.com/profile/03596142995497292286noreply@blogger.comtag:blogger.com,1999:blog-679982583847135662.post-17078058080844144082016-01-20T14:45:31.678-08:002016-01-20T14:45:31.678-08:00Thank you for dropping by and reading. And leaving...Thank you for dropping by and reading. And leaving a comment! Kazhttps://www.blogger.com/profile/06883203750700550391noreply@blogger.comtag:blogger.com,1999:blog-679982583847135662.post-63662619644478524152016-01-20T14:39:11.239-08:002016-01-20T14:39:11.239-08:00I will make it short and sweet. thank you for writ...I will make it short and sweet. thank you for writing a fantastic piece that says all that was needed to be said.<br /><br />brilliant, to the point.<br /><br />thank you.SallyBRhttps://www.blogger.com/profile/00590630253354085944noreply@blogger.comtag:blogger.com,1999:blog-679982583847135662.post-59714266593568825812016-01-20T13:47:07.227-08:002016-01-20T13:47:07.227-08:00Thanks Jodie. If I'm making some sense of the ...Thanks Jodie. If I'm making some sense of the discussion, that's a good thing - I've not seen a lot of sense out there in social media land... While I can understand the fears that Frey's death have awakened for many, I can't understand the hysteria. I don't have energy for that - apart from anything else!! <br />If, by the family making public his illness, there is an added level of public awareness about RA and other autoimmune diseases, that's a useful thing. However, clearly he chose not to be an active part of raising that awareness, and as you say, there are a gazillion reasons why that could have been, just as there are for the rest of us. Lene Andersen - who commented above - has posted an interesting piece about RA specifically - I'll tag you on FB so you can read. Different angle, but applicable to your situation too. <br />Alan Rickman must be MCing that party - wouldn't it be a blast?!Kazhttps://www.blogger.com/profile/06883203750700550391noreply@blogger.comtag:blogger.com,1999:blog-679982583847135662.post-18486364142803064392016-01-20T07:09:31.496-08:002016-01-20T07:09:31.496-08:00Again, I can rely on you Kaz to inject some sense ...Again, I can rely on you Kaz to inject some sense into the discussion. I agree that each person's battle with any sort of illness is entirely personal and one should not be obliged to turn it into some political or other kind of agenda. I find it hard enough getting through my daily life and managing my autoimmune conditions without any extra burdens or expectations of advocacy. Our first responsibilities are to our own health so we can be the best people we can be and live the best lives possible (for ourselves and those around us and our communities). Coming to terms with chronic illness and its progression and complications is a battle in itself and it needn't be a public one. Before anyone can 'go public' about anything, they need to be able to reconcile the situation within themselves - an ongoing process that may never be realised within one's lifespan. I had no idea that such arguments were going on in response to Glen Frey's death. Like you, it is a reminder and notice to everyone that RA can have serious consequences. I hope the awareness that is raised about RA can lead to better support for RA sufferers in the long run instead.<br />I keep thinking there must be a rockin' party going on in heaven with David Bowie, Glen Frey and Stevie Wright as new arrivals! Jodiebodiehttps://www.blogger.com/profile/11377052537742885631noreply@blogger.comtag:blogger.com,1999:blog-679982583847135662.post-35381025562998801412016-01-19T19:16:08.450-08:002016-01-19T19:16:08.450-08:00EXACTLY!!!
The big pharma conspiracies are just r...EXACTLY!!! <br />The big pharma conspiracies are just rubbish - I know where I'd be without the drugs, and I don't want it. So, I'll take them. Someone else wants to subscribe to the conspiracy theory - well fine, but keep it to yourself, and don't make ME the bad guy for taking the meds. <br />I find the current climate of 'ownership' of public figures offensive - I really do. Just because they have jobs that make them familiar, on some level, to us, doesn't make them our property, with rights to the inner workings of their lives. The press have a lot to answer for, as far as that's concerned, but so do the general public, for buying the publications full of paparazzi shots and scoop articles. It's hard enough to live with an illness, and G-d forbid, lose a loved one without it all being in the public eye. Everyone deserves, and should have a right to conduct their private lives privately - and there's NO obligation, in my book, for anyone with an illness to become a poster child for that illness.Kazhttps://www.blogger.com/profile/06883203750700550391noreply@blogger.comtag:blogger.com,1999:blog-679982583847135662.post-47527940651980958652016-01-19T18:37:16.344-08:002016-01-19T18:37:16.344-08:00Hear, hear! Nothing frustrates me more than the bl...Hear, hear! Nothing frustrates me more than the blind resistance against the medications. "Just find out what causes the inflammation and stop doing that" they say. Like researchers hacen't been looking for decades. "Just stop eating gluten" they say. Well, it's not as simple as that. And onto the privacy issue. Being a public figure does not require you to share everything. It's great when celebrities do, but jeez... when someone's dying, can't you allow them the dignity of privacy?Lene Andersenhttps://www.blogger.com/profile/11223128667829847717noreply@blogger.com